Friday, July 3, 2009

Friday morning update

Thank you friends for your hugs and prayers and words. Your encouragment means a lot to me.

Joshua was stable last night - 2am numbers were in the 200s (not uncommon for him at this point - and much better than too low).

This morning - 87. Low for a morning reading for him. Ate breakfast. Couple of hours later, he said he felt "funny". 67. Too low. Juice. Tried to get him to eat a heavy snack and he just isn't up to it. Had some grapes.

I have an email in to his dr and will call if I don't hear back soon. Not sure if this is sickness, too much insulin/not enough carbs, or going into the "honeymoon period".


Someone had asked if this could be controlled by diet.  Joshua is insulin dependant. For the rest of his life or until they find a cure. (I know this and still writing it makes me tear up.) He will still need to work on diet (as do those with type 2), but he will never be able to stop taking insulin. His antibodies have attacked his pancreas and it is not able to produce insulin. This is one of the huge differences between type 1 and 2 diabetes.

He will go into a "honeymoon period" where his pancreas will give one last go of working. It will seem that he is cured and all is fine. This *will* happen, but we don't know when. Nor do we know how long it will last. This also makes me   One of the doctors told me that parents often call it "the big tease". Yeah, that seems about right.

In the midst of it all, I'm thankful we are close to wonderful medical care. I'm thankful for those that have figured out how to help Joshua so that we can learn to help control his numbers so that he can live and do the things he wants to do in his life. I'm thankful for an amazing little boy who is taking this so very well. I'm thankful that God is holding us through all of this. I'm thankful for family and friends that encourage, support and pray for us.

This is hard, but I still have so much to be thankful for!


Also Daniel is still sick.  He seems to be feeling a little better than last night, but is quarantined at the moment with a good movie. 


Blessings


Leslie

7 comments:

  1. I'm sure that this is a far off option for him, but I have a cousin who has been insulin dependant for years. Several years ago she had an insulin pump put in and it has drastically changed her life for the better. That's something you may want to check into at some point.


    Kristie

    www.squeeli2.blogspot.com

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  2. healthyhomeschoolJuly 3, 2009 at 11:09 AM

    Dear Leslie, I'm thinking of you today and sending many prayerful thoughts up for you while I work.


    Last night when we headed to bed Michaela said, "remember, Mama, we have to pray for Joshua." We are still praying here and are so impressed at how much you are learning and doing for your family. You're truly a lovely person.


    Love,

    Lynn

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  3. Praying, Leslie! Em is in her honeymoon - she was 51 today before lunch and that was WITH dropping her 'log this morning! UGH!

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  4. Leslie, I've been keeping up with your goings on lately. I'm sorry that you are dealing with this but I can see that you are strong to meet the challenge. My friend Becky Spencer (http://www.beckyspencerministries.com/) went through almost the identical thing earlier this year with her daughter. They ended up having to use another method af calculating something, not quite certain what it was, but I'll bet you do! Anyway, Becky is a wonderful Christian friend to me. May I ask her to look at your blog and offer encouragement?


    Stephanie

    www.ralphcrew.blogspot.com

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  5. Leslie, you are on my heart. I am asking the Father to continue holding you in His hands. May you know His strength, peace and encouragement tonight.


    Love you,

    Scarlett

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  6. Kristie – Thank you for suggesting the pump. I’ve also heard good things from people about that. I know it will be something we will consider a little further down the road. It never hurts to check things out now though.


    Lynn and Michaela – Thank you both for your prayers! I think you are lovely too my friend and I’m thankful for you!


    Katie – Those low numbers are frightening, aren’t they? I’d love to hear more about Em’s honeymoon. How soon did she go into it? How is it going for y’all?


    Stephanie – I would love to hear from your friend. I’m open to hearing ideas and suggestions for handling this in a better way. It feels like a steep learning curve at the moment, but we have people helping us greatly. We have a really great endocrinologist!!!


    Scarlett – Thank you for your prayers and encouragement sweet friend! I am thankful for you!

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  7. Leslie - I sent you an email to the addy on your profile. :o)

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