On Thursday of this week, Daniel will be going to the Duke Eye Center to meet with a neuro opthamologist. We have been told that he will be there for 3 hours of testing, though I don't know what any of the tests will be. I do know that his eyes will be dilated and that is really about it.
I think 3 hours of testing could be hard for anyone. I know that having your eyes dilated is no fun. For our sweet little boy with sensory processing issues though, it is all magnified and compounded. It's going to be a hard day for him. I'm going to be taking things with me to try to help, but it's hard to plan for something when you really have no idea what is going on. (If anyone has suggestions, I'm open to hearing them.)
For those who may have missed an earlier post on this, Daniel has "prominent optic nerve pallor". This was seen at his last routine eye appt in Oct. She has referred us to a specialist to see if there is something going on. I've googled a little bit to find out more of what we are dealing with. Pallor is also sometimes called "atrophy". It also appears a little more worrisome that it is in just one eye.
I have to be honest - I'm scared. I try not to think about it much and that is helpful. (The Scarlet O'Hara method of dealing with things.) There are times though when I have to face it. I'm not trying to borrow trouble and thus try not to think on the "what ifs". I still find that I am fearful of what the future my hold for our little boy. Scared that there will be something. Scared that it will be another something "big". Again though, I don't dwell on it.
I know God is holding our little boy. I know He loves us. I know He is with us. It is really all I can hold on to right now.
I've been told that it may take a month to get the results back. I'm really hoping that is not the case! I would love to know more on Thursday. I really just want to hear that he is fine.
Thank you for praying once again for our family.
P.S. I've been trying last night and again today to post pictures and am having troubles with photobucket. Not sure what is going on there, but am hoping it is fixed soon. If not, I may be posting somewhere else and will certainly update here.
The mere edges of His ways
1 day ago