Just thought I'd share a glimpse into our week.
Monday - I need to start giving standardized tests to my oldest three. It's required by law in NC or I wouldn't consider doing it this year. It will be interesting to see how they score given that their schooling the last 6 months has been a little less than traditional. I expect to see that they have progressed as though they had schooled normally. Even if they don't, they have each learned lessons in compassion, serving others and lots of health/medical issues that won't show up on a test, but will show up again and again in their lives. I'm glad that they are learning lessons that will serve them no matter what they choose to do in life.
Baseball game in the evening with friends. It's a "Family Night" featuring a Christian band and the Veggie Tales (or "Potatoes" as my 2yo calls them - not sure why). Eliana and I won't be going.
Tuesday - Physical therapy at 12:30. Yes, that is right during her feeding time so I'll need to try to adjust it so as not to interfere. She is doing so well in this area that it is fun to see what is coming next. Then she'll have feeding therapy at 5:00. It will help to have her schedule shifted as this is not a normal feeding time for Eliana. It's a good thing we have the night to catch up or adjust schedules as needed. Since she doesn't eat at 3am, it gives me flexibility to give the midnight feeding later if we are behind. If we go out - to an appt, or like today to church, then inevitably we will be behind. I'm an hour behind today due to church, so up later to get in that last feeding.
Wednesday - Nothing! I love days of staying home. It won't be nothing to do as we will need to keep on with the testing.
Feeding is still a struggle. She seems to be getting worse. We have managed to find a way to get her meds in using a syringe. The first one clogged up, but a smaller one seems to be working fine. It is so small that it takes 5-7 times to get the meds in, but Eliana doesn't seem to mind.
Thursday - My sweet Daniel will be 3! How can that be that my baby is 3 already? He is such a joy and delight. He loves to smile and laugh. When I asked him what he wanted for his birthday he told me "chocolate cake". I asked what he wanted on the cake - I was thinking of a theme or decoration. His response was "candles". LOL I think I can manage this! I need to plan some sort of small party for him though I'm not sure when that will happen.
Roger usually takes the day off on the children's birthday and we let them decide what we are going to eat and what we are going to do. It will be fun to see what he is going to pick.
Friday - Nothing scheduled except maybe the science lab for my 14yo. We are behind and have just a couple more to do to finish up the year. He enjoys it so it isn't a problem to keep up with science.
So, that's a glimpse of our week. No medical appointments! Next week we'll have 2 - one with our eye dr and the other with the surgeon for the g-tube.
As usual, it is very very late and Im exhausted. More later. I have some photos of Eliana eating that I want to share with you - and maybe a video clip of her laughing that is too cute!
I came to you in weakness and fear, and with much trembling. My message and my preaching were not with wise and persuasive words, but with a demonstration of the Spririt's power, so that your faith may not rest on men's wisdom but on God's power. 1 Corinthians 2:3-5
Flying into a storm.
2 hours ago