Thursday, June 25, 2009

Prayer request for any night owls reading this

I'm trying not to worry and I have prayed, but still the uncertainty of all of this is a little unnerving.

Joshua has blood checks done 5 times per day - before breakfast, lunch and dinner, before bed and at 2am.  His numbers have been coming down since Monday.  Most of his readings on Mon were over the highest reading (500).  One lab gave us results of 643.  That is really, really high!

For the last 2 days he has been in the high 200s.  Last night (2am) he dropped to 118.  That is in the normal range, but a really big drop.  I talked with the drs and nurses about this and my concern that he would drop even more once his day numbers were not so high.  They did adjust his night shot doses to accomodate this.

Tonight, his reading before dinner was 288.  His meal was pretty low carb and after doing his next reading I wondered if it was too low.  At 9pm was 128.  He had a good healthy snack (with some good carbs in it) and no shot of insulin.

All of this background (which may be more than you want to know), to ask that you would please pray that his numbers are alright tonight.  I'll be checking him at 2am and just want him to be in the normal range.  Not dropping much from the last number would be great!

I know we'll have to deal with low blood sugars, but I'd love to skip that one tonight.

Sorry this isn't much of an update - more tomorrow as I'm able to.  There is a lot to do here and to catch up on and children that just want mommy time.  :-)


UPDATE: Just finished his poke. It took 4 tries as I just couldn't get any blood. After the third try, he asked me to stop poking him.

I switched needles, hands, fingers. *sigh* This is discouraging. The upside though was that I could tell he wasn't "low". I was stunned at his numbers though. 388!!! Yikes, what a jump.

This feels like a rollercoaster. It is hard to do anything that hurts your child, even when you know it is for the best. These finger sticks are just hard for me. Thank you for your prayers!

We are home!

I don't have time to type much now, but just wanted to update that we are home.  We checked out late this afternoon.  It's a little scary, but also good to be home.  UNC hospital was a great place to be for all of this!

I did my first sucessful blood draw and reading (had to do 2 readings at the hospital and there was just never enough to do the 2nd read - our machine).  I also gave a shot and measured out portions of a healthy meal.  Joshua was a wonderful help in all of it.  He has been amazing. 

I'll write more as I can later, though I'm going to have to adjust a lot of what I'm doing.  I know going to sleep earlier will be more important as we look to getting on a routine around here with blood checks, shots and meals. 

Thank you for your prayers and encouragment.  I'll do my best to answer - but do know I'm reading and appreciate so very much your words!

With love