More to update today. We had eye appointments this morning for Christopher, Joshua and Eliana. We have been visiting this eye doctor for 10 years. She commented that she thought this was the longest we'd gone without seeing each other - 6 months. We have been there a lot over the last decade!
Christopher got fitted for contacts. He tried them last summer and couldn't get them to work for him. He has done much better with them today. It's amazing to me how different he looks without his glasses. I think he is pretty excited about them. He bought a pair of sunglasses tonight and commented that they were his first pair. I took a photo of him and will try to download it sometime this week-end.
Joshua didn't do so well on his eye exam. He has actually lost some of the vision in one of his eyes. :-( He is nearing the age when corrections won't be possible as the eye stops growing around age 8. We are supposed to do more patching. We haven't been as consistant as we should have been the last 6 months and really need to be diligent about it now!
Eliana had to get drops which she was not happy about. I told the doctor that I wanted to hear that Eliana did not need glasses. She said, "Well I can say that to you". (This was before examining her.) They thought she looked good in terms of being equal in both eyes and tracking. Eliana wasn't the most cooperative by the time it came to be examined. It took me holding her and the doctor prying open her eyes to get a peek at them. Eliana is a little far-sighted, but does not need glasses. I asked if she would definitely need them and the doctor wasn't sure. She said that Eliana might grow out of it. Oh, that is my hope and prayer!
I feel like this is yet one more time that we are going to be in limbo ... waiting. There has been a lot of unknowns ... wait and see ... wait until ... wait. Is this my test? Learning patience while waiting? I think I'm doing better. I've been surprised at times that I was alright with the waiting. In all of this, we have had no control and so in some ways that made it a little easier to just rest in God's perfect timing ... and wait. At other times though it has been hard. Going into the eye appointment I was hoping and even expecting to hear something one way or another about Eliana needing glasses. I wasn't expecting this. It's alright though. I'd rather hear this than to hear right now that she needs glasses.
Physical therapy went well even though Eliana was very tired. She had a hard time napping today. It's fun to watch her learning and doing new things. It's also really fun to see her therapist get excited about the things that she is doing. It gives me a fresh perspective on her skills and accomplishments that I really enjoy! I am thankful for this encouragment - and that too of a dear friend that writes often to cheer me on and to applaud each step of progress that Eliana makes.
I talked with someone at the Duke Development office today. She was very excited about what Rebecca has done and is looking forward to making a "big deal" out of her donation. I'm excited too - and proud of what she has accomplished. We decided to wait until she was a little closer to her goal of $5000 and then we would start setting up a time to formally give the money. Rebecca has been working diligently this week to build up her inventory again. Additionally, several friends have written today about Rebecca's bracelets offering help or wanting to buy a bracelet. I continue to be thankful for the response to her efforts.
Tonight Roger's sister and family have arrived. We were very excited to see them and the children stayed up late to welcome them here! It has been a long time and we are looking forward to getting to know each other again and having fun too!
Tomorrow we will be meeting with the surgeon to find out more information about the G-tube. I appreciate your prayers for wisdom in knowing questions to ask and for any decisions that must be made. I will update as I am able.
Thursday, April 20th | Week in the Life 2017
12 hours ago