I woke up bright and early this morning - well, it was early but I probably was anything but bright! I'm really not a morning person - especially when I get to sleep as late as I have been the last couple of weeks.
Anyway, Eliana was bundled up and at the ped office by 8am. This was to avoid any crowds or sick children and to be the first one seen. We were thrilled to find that Eliana has gained 4 ounces since Monday! This is almost an ounce a day!!! This is huge for her. Our ped was also thrilled with her weight gain. We haven't been able to get in 20 ounces per day but closer to 18 on average. Thankfully this seems to be working. Way to go Eliana!
Our ped called the cardiologist and we won't have to go back there until next Thur instead of on Monday. This gives us a little more time to grow and get bigger. I'm guessing we'll learn more with each visit, but at this point the surgery doesn't look quite so imminant (though I'm sure that could change at any moment).
The one thing that was a little difficult to hear was discussion of a feeding tube. I've kind of resigned myself to the fact that this may be inevitable for Eliana. It sounds like it is just a part of being a "heart kid" that she will have to go through. I have also felt comfortable knowing that we've done all that we could to get her to eat and that if it isn't enough then the feeding tube is a good next step. I've been prepared myself with thoughts of an NG (tube through the nose and into the stomach) tube, but today the ped mentioned a G tube(surgery to put a tube directly into the stomach). She thought this might be easier on Eliana. I was a little surprised by this and didn't ask the questions that are now running through my mind. I would obviously prefer she not need additional surgery and this one seems ... I don't know , yucky for my little girl. I know that I can call back my ped and ask questions and that's probably what I'll do as she is really great at answering all of our questions.
So, that is where we are today. Great news on the weight gain! We'll go back to card in 5 days and back to the ped a week after that assuming things stay as they are in terms of eating and distress.
Thank you friends for your love, support and prayers!
Week In Review 2020: Week 1
1 day ago