It's late. The end of a long day. I am ready to go to sleep, but wanted to write a quick update. We had another busy day - and are thankfully home! We saw the residents on the early rounds (just before 7am). They thought Eliana looked well and were pleased with how she is tolerating her feeds. She took 4 ounces at 6am through the g-tube as she was asleep.
I fed her at 9am, noon and 3pm. She took 1-2 ounces each time. She slept through the 6pm and then ate some at the last feeding of the day. (About 40ml or 1.3 ounces.) Overall, it was a good day for her. I am hoping that she will continue to improve with her feedings.
Her surgeon came by about 9am while the feeding therapist was there. He asked if we wanted to go home. I told him that I thought Eliana was doing great from a health standpoint and that I'd only want to stay if it meant she could get more feeding therapy to help her eating. He seemed fine with that. I talked with the feeding therapist about this and she didn't think staying would help. She said we were doing everything right and that following up next week with our therapist would be great. So, we were good to go home!
I had the same awesome nurse again today that I had yesterday. What a sweet blessing to have two great nurses on back to back days and nights. The day nurse was great about helping me to learn how to do the g-tube. She is encouraging and positive. Really great. I'm planning to write letters about both of them.
It was so good to get home - and get lots of hugs. My parents left shortly after we came home. I'm glad that they were able to come and spend time with our children. It was incredibly helpful to have them here. I know that the children had fun with them too!
I'm going to cut this short as I'm so very exhausted and I'm sure my writing shows it!!! I know that 6am will roll around really early too. I'll post more tomorrow - with some more photos too. Here's my favorite of a happy little girl ready to go home!
I love seeing her face without the tube! This is just the second day in the last 5.5 months that she hasn't had a tube on her face. It's been since Feb 5th since she was free from the tube. Thank you for your prayers and encouragment. As God brings it to mind, please keep praying that our little girl would improve more and more on this eating!
With love,
Leslie
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