Prayer request for our sweet Daniel

Hi friends,

Would you join me in praying for our sweet 4yo boy. We had what I thought was going to be a routine visit to the eye doctor today. The appts with Rebecca and Joshua went smoothly. Joshua's vision has improved with the continous patching he has been doing!  The appt with Daniel took longer.

We talked and I had shared some of what had been going on with Daniel regarding sensory issues.  I wasn't sure if she knew what to make of that - but then again lots of people don't.  She even commented that my last two children were giving me a run for my money. 

As the appt continued, she just kept looking and looking into his eyes. I thought it was just because he was wiggly (he was) and maybe not cooperating as best he could. I didn't realize that she was looking for something specific and having a hard time finding it.

When she finished the exam she told me that she could not find the outline (may not be remembering the words exactly right) of his optic nerve in one eye because it was swollen. She said it had been difficult at times in the past, but that she had always found it. Well, this time she couldn't. As I sat listening to her, I really had no idea what she was talking about or what this could mean.

Her next words though sent a chill through my body. She wants Daniel to have an MRI to see if there is a mass or ??? causing him to have a swollen optical nerve. As her words sank in, I could feel tears coming to my eyes.

We talked about details - when would it be done and where (Duke). What the process entails (40 min scan of his brain inside one of those tubes) and would he be sedated (yes!). As I worked on details, it was easy to let go of the idea that something might be wrong in my little boy's brain. She tried to assure me that she didn't think that there was anything, but that we needed to do this to rule it out.

I didn't ask a lot of questions about what this could mean. A "mass"? I don't know. I wasn't sure I wanted to go there. At times, the details can just overwhelm me and I'm trying to just be reassured by her thoughts that everything is probably fine. 

Daniel also has a malformation of his skull (it has a name ... cranio ... something). His ped told me when he was a baby that we could have it repaired, but that it was purely cosmetic and wouldn't affect him in any way. I took his word then and didn't ask for any further testing. Now I'm wondering if I should have done more.

I'm trying not to think about it because when I do it's scary. One more opportunity for me to learn to trust. To be willing to put my child into God's capable and loving hands. He is there anyway - I just need to trust. I know Gods love and I'm thankful for that.

We have scheduled an MRI for the 27th at 2pm. I would love your prayers - for peace for us while we wait, for a smooth procedure and clear results. Obviously too we are praying that there is nothing wrong with Daniel.

Thank you dear friends for standing by me once again.

Blessings,

Leslie