Sunday, October 11, 2009

Sweet gift

I am blessed in so many ways.  I know that sometimes people look at my life and see the weight or the burdens of things we are dealing with.  I understand that.  I probably would have viewed it that way a few short years ago.  A lot has changed in our life in a few short years.  I won't say that it hasn't been hard - or that it doesn't continue to be hard some days.  Without going through the hard times though, I wouldn't have learned about God's faithfulness, love and goodness. 

The hard times have changed me and given me a different perspective on things.  For me, this is a good thing.  That doesn't mean that I don't wish at times that it were easier, that there weren't so many decisions and things to figure out.  It is an area though in which I have much to learn about leaning on God, listening to Him and following where He leads me (and that isn't always where *I* want to go!). 

Lately, I feel overwhelmed with the need for information and also the need to make decisions.  What is best for each child?  How can I help my children to learn given their unique and sometimes challenging learning needs?  How do I even know what is best given the myriad of choices available and the conflicting advice on which route to take.  It leaves my head swimming sometimes, though I'm trying to tackle it a little bit at a time. 

One of the blessings of making decisions and that most of them aren't final.  I'm not commiting to something that can't be changed if it isn't working for our family.  I'd like to make the best/right decisions the first time, but know that isn't always possible.  I don't want to make wrong decisions though that are detrimental.  Does this even make sense?

One of the decisions looming in our future is what to do with Eliana when she turns 3.  She is currently in a program for children age 0-3.  While in this program she receives therapy for her various developmental needs.  This is a wonderful service.  Most of these therapies occur in our home which is also a blessing.  She currently has 5 therapies per week (2 speech, 1 occupational/feeding, 1 physical therapy, and 1 developmental/music therapy).  This will all end when she turns 3.  The typical course of action is to then enroll in public school preschool where she would get therapy.

Personally, it would be very hard to enroll my little girl (she is still so very young developmentally) in school and have her gone each day.  I do want to do what is best for her though.  I'm not sure that for our family though that this is the best choice.  I'm still praying, pondering and looking into our options.  I'm wanting God to show us what is best for Eliana.

I've had a couple of things recently that are encouraging me that we can school our girl at home.  Not big things.  I'm not sure God always speaks to me in big ways though. 

Therapy.  That is honestly the biggest draw to putting her in school.  Our insurance will cover some therapy, but not all of it.  We recently had good news about the therapies that Eliana will be able to receive that is covered by our insurance.  She is eligible for twice what we thought she would be able to get.  One half of that would be for speech and the other half for pt/ot.  It is not the amount that she gets now, but is still much more than we thought we'd be able to get.  I'm thankful for that!

Teaching Eliana.  She learns in some different ways that will make using a traditional curriculum challening unless adapted for her.  I have a lot to learn about how best to do this (while juggling schooling for my other children as well).  I've gotten some encouragment here too.  I'm going to share three of them.

First, my friend Hollie recently showed me a curriculum designed for special needs children (specifically Down syndrome) made by/for BJU press.  I wrote to the gal that wrote it and she sent me a copy of the curriculum for 3yos.  It isn't complete, but is a great start.  I need something to help me as I get started and I think this will be a great thing.

Second, I ran into a blogging friend while we were on vacation!  How ironic is that?  I recognized her daughter from pictures on her blog and when I heard her name, I knew it had to be her!  Beth is homeschooling her 11yo daughter who also has Down syndrome.  She has shared great information with me in the past about homeschooling DS.  We were able to talk briefly and I shared some of my concerns with her.  Beth was very encouraging to me that I could do this. 

Third, just today I received a gift.  Two new books that will help me teach Eliana. 

Teaching Math to children with Down Syndrome
AND
Teaching Reading to children with Down Syndrome.


Rita was doing a give-away on her blog to celebrate the birthday of a little girl that lives far away that has captured her heart.  You can read more about this celebration and see her beautiful family on her blog.  Thank you Rita!

Now, I realize that none of this is huge.  I realize that this may not be God's answer.  I'm open to hearing, but am increasingly at peace with the path I believe He is leading us down.  I am thankful for the opportunities that I have to learn, to be molded and to grow.  I'm thankful for a Father that guides me, teaches me and loves me completely. 

I'm thankful for the sweet gifts He gives along the way!
Leslie




10 comments:

  1. Michelle @ Delightful LearningOctober 11, 2009 at 9:28 PM

    Sometimes His voice is just a whisper in the wind ~ sounds like you got your answer! I am praying so. I pray you get all the help you need for Eliana and that every moment you have with her is a blessing and a joy! *Ü*


    (Have you considered ASL? I ordered some DVD's from Signing Times and I noticed there were some DS children in there signing. From what I understand, signing can help delayed speech. You may already know this though!)

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  2. Hi there, I'm not sure which state you live in, but here in Michigan, even homeschooled children can get free therapy through the school system, w/o going to school there. I've known several moms who have done this and it worked well for them and their child. It will be really awesome to see how God works out His plan for her.

    Lori

    http://www.homeschoolblogger.com/henhouse

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  3. A friend of ours chose to homeschool her handicapped child, who was 'supposed' to never be able to function in society, let alone read. Well, he reads, and it seems he will be able to be an independent adult!


    This would not have been possible without his mother's teaching; in the schools he would not have progressed this far. Love makes all the difference.


    Wishing you all the strength you need as you make this decision.


    Annie Kate

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  4. I'm so glad you're getting some options presented! I have several friends who are hsing their children with special needs, and I have no doubt you'd do a fantastic job!


    Remember too that you have to give permission for Eliana to do anything with the school system... meaning you can choose what she goes for. You could just have her there for 2 hours, 2 days per week and have her therapies scheduled during that time, for example.


    One of my friends child with DS is the 8th in their family. At their last visit to the developmental specialist, she told this mom, "You're doing great with Jonathan at home. Don't let anyone tell you he should be in school." :)


    Praying you'll know what's best!


    Melissa

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  5. I am so glad that you are finding encouragement. I really feel that you will be able to provide whatever your dd needs. I put my special needs son into school and it was a waste of time and did nothing but damage. Of course, there are kids that do very well in public school. Keep praying~I know you will do what is best for your family. You are doing a great job.

    Blessings,

    Dawn

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  6. Leslie,

    I have a 10 year old daughter with DS and we are homeschooling her. We did a neurodevelopmental program from age 5 months to age 5 1/2 that we received training on and then did at home (NACD and Hope and a Future). After that I continued with various hs curriculum. Lydia is thriving. She reads at around a 2nd grade level, is learning math, spelling, writing and speaks well, although we do need to work more on speech clarity.

    You can do it!! A former teacher told me recently that Lydia would not be doing so well if she were in public school.

    Another thought to keep in mind. I would be apprehensive about sending a child who could not speak well into a situation with strangers. They might not be able to let you know if they were being mistreated.


    Anne C.

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  7. Michelle ¡V Thank you for your prayers. Yes, we do ASL here. We LOVE Signing Time and are huge fans. Eliana watches it almost every day.


    Lori ¡V Thanks for sharing. We are in NC. I¡¦ve asked about getting therapy without going to school. So far, I¡¦ve been told that I need to attend and set up an IEP and then I can ask about this, but they will not tell that it is something that can or will happen. So, without setting up that meeting (yet), I don¡¦t really know any details. I¡¦d love for this to be an option though.


    Annie Kate ¡V Thank you for sharing that very encouraging story! I love hearing things like this and I do think Eliana will do well here too. She is bright and fun to teach and you are right ¡V I love her to pieces!


    Melissa ¡V Thank you! It can be hard to know your options when it¡¦s hard to get your questions answered. What a sweet thing for your friend to hear. I love the confirmation that she is doing a great job. ƒº Thanks for your prayers!


    Dawn ¡V Thank you for your experience, encouragement and prayers. It can be hard to go against the flow and it does help to hear positive stories from others about the blessings of being home!


    Anne ¡V I¡¦m so glad to hear that your daughter Lydia is doing so well! It sounds like you have done a great job in working with her. I¡¦d love to hear more about what you have done. It seems a little daunting at times. You are right about the speech and that is a concern to me as well. Thank you for encouraging me. It is so helpful to hear those positive words.


    Thank you to all of you for taking time to encourage me!!! I am thankful for your words and prayers.

    Blessings

    Leslie

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  8. Leslie,


    How encouraging to hear the small, quiet ways God is encouraging you and guiding your heart toward HIS choice for your family. I love how God works! So often the lesson itself is hard, but the teacher is so gentle. May the Lord continue to guide, encourage, and strengthen you for what He's called you to do.


    Many blessings,

    Pam in SE MI

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  9. I am not in your shoes as we don't have any kids who have obvious special needs (though our 2 boys ages 6 and 5 might well be called ADHD in a school setting!) But I do believe that God can make a way to homeschool and it seems like he is putting it on your heart.


    God bless, Laraba

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  10. Laraba - It has always been my heart to homeschool her - just like we have with our other children. It is just that I am feeling considerable pressure from others - therapists, etc to put her in school. I keep hearing how it is what is best for her.


    I just need to have peace that what *I* want is also what is best for her too. Thank you so much for your encouragment!


    Hugs

    Leslie

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