Tuesday, June 23, 2009

Tuesday morning at the hospital

Hi All,


Thank you for your prayers, notes and calls.  I apologize that I haven't been able to pick up on all the calls.  Yesterday was a long, long day. 


I reread my post yesterday and it seemed so ... emotionless.  I think it was a little bit of shock and just feeling the urgency of heading to the ER.   I'll try to share a little bit today while I have a few minutes, but know that this may be disjointed.


Yesterday we arrived at UNC a little before 5pm.  We checked into the pediatric ER.  Isn't that nice to have a peds ER?  We were there for over 5 hours.  Roger met us and the three of us were together during this time.  We talked, laughed, and played cards between visits from 5 doctors and a very nice nurse.  All of them were nice really.  The nurse went out of her way though to be kind to Joshua getting him some of her own sugar free drink mix to have when he was so hungry.


We began the learning process of what diabetes is - and what is happening in Joshua's body.  Basically, his pancreas is not functioning.  The antibodies that protect us from germs and diseases have gotten confused and attacked his pancreas.  The pancreas is what makes insulin for our body.  When we eat, our pancreas gives us just the right amount of insulin to be able to handle what we have ingested whether it is a piece of fruit, a sugary drink or protein.  The doctor shared that the pancreas is a truly amazing organ and that medical science has done it's best to replecate its function though it's not nearly as good.  That isn't surprising that God has made each part of our body to function in an amazing way.


After blood draws for many tests, they confirmed that his blood sugars were still very high - "critical" was the word that they used.  The good news is that he is not septic or in high distress because it was caught early.  This means he was sent to a regular room instead of ICU and hopefully will have a shorter stay.


Through all of the wait, Joshua was so good and so brave.  He was also very hungry!!!  The dr explained that because he wasn't producing insulin, the body was not able to deal with the sugars in the foods he eats.  They were just discarded instead of being sent through the body - leaving him ravenous!  So, by 10pm he was starved!  They didn't want him eating until the blood results were back - and then I'm not sure why it took so long to get food.  He loved the food they finally brought.  Said it was the best meal ever.


We were taken up to our room about 10:30?  More check-in, questions, tour of the floor, learning more about his "pricks" and his first dose of insulin.  One of the nurses told me (though I heard this a LOT), that they would be "overwhelming us with information" over the next few days.  I laughed and thought to myself that it was a good thing that my mind was empty and bored.  Um, right! 


Our room is HUGE.  It is nice and friendly for a hospital room.  The staff have all been very nice. 


Joshua got another meal tray when we got to the room and Roger brought me some food from the cafeteria.  Isn't he nice?  He stayed for awhile until we were settled in for the evening and then went home. 


After everyone had left and all was calm, I sat in the bed beside Joshua to read him a book.  At that point,  he just started to cry.  He wondered "why me?".  Haven't we all asked this question of God?  I know that I have.  He was worried that he was going to get in a coma (someone mentioned this as a possible thing that happens).  I assured him that this was caught in time and was not going to happen.  He also tearfully asked if he was going to have to "prick" himself multiple times for the rest of his life.  I answered honestly.  Yes, at this point, that is what life is going to be like.


I just held him and comforted him and we prayed together.  I know that the prayers of others are helping all of us so much.  Thank you!  And please keep praying. 


Joshua continues to be brave.  He would love visitors if you are local - and not sick.  ;-)  I think he is feeling a bit - not a lot - overwhelmed.  He is also feeling like a pincushion.  He is up to 8 so far.  Yes, he is counting.


You are welcome to phone us - and hopefully we'll catch you in between doctors.  You know how it can be in a hospital.  We will be here a few more days as we learn how to administer shots and manage his blood sugars. 


Through all of this I have felt a peace that can only have come from God.  I think He has been preparing me for this.  I also think that having walked the road with Eliana that this one is less intimidating to me now than it would have been a couple of years ago.  I'm thankful to know that God is with us every step of the way.  I'm thankful we are in a place to receive such good medical care.  I'm thankful for family and friends who are praying with us and supporting us.  In the midst of all of this, I remain thankful.  God is good.


Need to go hang out with my sweet boy who is asking a million questions!  We've started a great book and he is ready for the next chapter.  I'll update more as I can.


Love


Leslie

7 comments:

  1. Sounds familiar. We are all praying for your family, Leslie!!

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  2. Poor little guy! Still praying for you all.

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  3. Leslie,

    My heart aches for you and Joshua. How overwhelming for a little boy.


    I am praying and thinking of you today!

    Lisa

    'Lisalyn'

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  4. I'm so sorry your little guy has to go through this Leslie! Continuing to pray for you all!


    Heather P

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  5. healthyhomeschoolJune 23, 2009 at 9:46 AM

    Leslie, I can't see for the tears. That site you linked is very sobering. Again, I do know a family with a daughter who was diagnosed not too long ago. It seems like yesterday, but I bet it's been a year now. She was younger than Joshua at diagnosis. She's the picture of health now and seems to have adjusted well. Again, I'm just trying to encourage you. I hope it doesn't seem crass in light of what you are facing personally.


    Are there books -- puzzle books, or games, electronic or otherwise that Joshua would like to have right now? Anything? Does he like to read about any certain thing?


    We are praying here,

    Lynn

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  6. I am lifting you up to our loving Father, Leslie. I know you and Joshua are in His hands. My dear friends, Bart and Shannon have a son who has juv diabetes. I know Shannon has blogged about some of their experience. I'll send you a link.


    Love you, friend, and will continue lifting you up!

    Scarlett

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  7. Hi Leslie, I am so sorry to hear about Joshua. I am praying for him and the rest of your family. Mom and Dad said they had a great time visiting with your family at the beach last week. I wish I could have been there also. We are not going til the end of July. Please keep updating us and I am glad to pray specifically if you let me know what to pray for. Wish I was close to help you but I am thankful you have great friends and family close by. I will see Laura and Brad next week for orientation. I would love to send Joshua something. If you have a chance, send me a list of some of his interests or books he likes to read. God bless! Love, bonnie

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