Praise God! The first 4 days were rough - lots and lots of leakage. At times I wondered if I should be doing something more or different. She didn't seem dehydrated though and so we just plugged along doing the best we could.
Yesterday (Tues) was the first day I could see any improvement. Today has also been much better! The leakage is much smaller and is contained by the pads. Also her site is looking better. There is a strange "black string-looking thing" coming from the site. I haven't had the nerve to pull on it until tonight and it is definitely "stuck". I'm not sure what it is and am hoping that maybe it will fall off. If not, I'll call our ped.
So, the surgeon was right. It would close on it's own - with no intervention at all. I'm thankful for that. I'm thankful Eliana did not have to have another surgery. I'm so very thankful that the tube is OUT!!! Yippee!!! Now, I'm feeling like I can celebrate and enjoy.
The bandages are irritating her skin. I'm treating it with mylanta. (Per the surgeon's instructions.) I'm not sure how much longer we'll need to keep things bandaged. We'll just play it by ear and do our best.
Thank you for your prayers and notes of encouragment. I'm thankful for you dear friends that have walked with us through our ups and downs.
This note is short. We've had a busy day. In between trying to do school, we had 2 therapies this morning - sensory/feeding therapy for Daniel and then feeding therapy for Eliana. In the afternoon, physical therapy for Eliana. So many things to remember and try to do. It really goes against my "go with the flow" nature in terms of my days. I'm learning though and working to get better. Maybe in truth it's just laziness and I'm learning to be more disciplined. That is a good thing too.
Tomorrow we are expecting a visit from my parents. We are all very excited to see them! In the morning before they arrive we are scheduled to go on a field trip - flying! It is weather dependant so we'll see if we are able to go up.
I need to get some sleep now. Thank you again for your prayers. I'll try to post some Easter pics soon.
Blessings,
Leslie
Posts
Rejoicing with you over the healing. Continuing to pray for your sweet girl. Also praying you have great weather tomorrow and get to go flying - how exciting! Blessings,
ReplyDeleteShannon (FIAR)
I am *so* glad everything is taking care of itself. What a relief she won't need the surgery!
ReplyDeleteNo, neither of my siblings were adopted. I don't know many people who have adopted a child with DS either. I am sure the Lord will guide you as you pray about what is right for your family!
Leslie, once again I miss a week or two and I can't believe her progress when I check in again! Yay for not tube, although I'm so sorry for the traumatic procedure. That was the way they took out Braska's PEG tube but they put in the button at that time. Our button has the deflatable balloon on the inside, so I'm glad we don't have to go through that again. We won't be getting rid of her button any time soon at all, so we don't have to think about it. Eliana is just flying through the milestones! Climbing, standing, and cruising?!? That's crazy good. How exciting!
ReplyDeleteRecovery can be so hard! Glad the leakage has calmed down a bit.
ReplyDeleteIs the string part of the old suture? Yikes! Hope it is nothing and will take care of itself.
Give that girl a kiss for me!
Thank you friends for your prayers and encouraging words.
ReplyDeleteShannon - We did get to go flying and I hope to post pics soon.
"Earthling" - Your family is beautiful. Thanks for sharing with me.
RK - Each milestone large and small is exciting, isn't it?! I love reading about all that your cute little Braska is up to as well!
Kristina - I'm not sure what it is? It doesn't seem to be causing problems though so I'm not going to worry about it. lol
Love you all!
Leslie
just checking in on her...
ReplyDeleteI bet the healing is great by now!