Friday, January 18, 2008

News from this week ...

We've had a busy week - and I thought I'd share about the last couple of days. 


Wednesday was our therapy day.  It feels like a really long day - and one in which it is hard to get much else done.  I am trying to keep my focus on the good things that come from these therapies though.  Daniel LOVES going to his therapy and asks frequently if he can go see Miss L.  He wants to have her come here - and I agree - though for his needs there is better.  She told me that she was going to really focus on Daniel's sensory issues.  She doesn't think we will make much progress with eating until we can work through some of the sensory things first.


Some of the things we are going to be working on at home with Daniel include "brushing" him (soft bristled special brush) several times a day.  He hated this the first time we tried it, but has gotten better with tolerating it.  I tried it on myself and thought it felt good - like a deep massaging brush.  For my sweet little sensory avoider though it was just too much.  We will be trying other sensory things with his hands like writing in flour, playing with play-doh or in rice or beans.  He is liking these things.  He does not like getting his hands messy or dirty though.  He is the first of my children to want to wash his hands when something gets on them.


All of this sensory stuff is still really new to me.  I don't understand it and will probably be seeking out some books to help me get a better grasp on things.  The therapist said that most of us have sensory issues - things that affect us - but we are able to deal with them.  Things like not liking loud noises or bright lights or the touch/feel of certain things.  For others, the sensory issues can affect how they are able to manage living. 


Eliana tried a new food at her therapy time - noodles.  Her therapist thinks she likes textured foods better than the soft baby foods and wants us to try giving her more of these.  She also liked eating a club cracker stick.  She gave her some water to drink and she closed her mouth (instead of leaving it open) which is also great news!


Physical therapy was also on this day.  We spent most of the time working on the steps.  Eliana has gotten good at crawling over things (usually my legs) and the steps are the next thing for her to master.  Now, I really don't want her to know how to climb the stairs.  I mean, we'll have to keep her from climbing them as soon as she figures out how to do it.  LOL  She worked hard - though cries and wants to cuddle when she is just tired of the work. 


Wednesday was also Roger's birthday.  The children all made cards/e-cards for him.  I love seeing their thoughts and how it comes out in words and pictures.  The also gave him a great greeting.  The older children decided to pool their money to buy a dinner out for both of us.  We tried to go that evening, but Joshua gagged (literally) on a green bean.  We wanted to be sure that he wasn't sick so we postponed the dinner date.


Thursday we had our monthly visit to the pediatrician.  Eliana has gained weight!!!  She is up to 18lb 2oz.  This was her main concern last month and her ped believes it is essential to her getting the g-tube removed.  She is progressing along a curve - lower than before - but has a pattern from the last 2 months.  Her ped wants her to make 2 more moves up the curve before she recommends the tube being removed.  She also commented though during her exam of  Eliana that she looks well and has enough "fat'.  She's just a petite little thing. 


Otherwise she is doing well.  Her ears look good.  Her ped is amazed that she has dodged the ear infection even when she had a cold.  I'm hoping that she will continue on that path too!  Dr L also commented on how well she engages with people.  I love hearing things like this. 


Last night, Roger and I were able to go out to dinner.  Eliana came with us and slept through it all.  It was quiet in the restaurant as we went out late.  It was a nice time together. 


Today has been a full day AT HOME!!!  I've always loved those days, but with things that cause us to go out during the week, I'm especially thankful for our days with nothing to go do.  We are staying home.  Friends are coming over for pizza and a movie.  I'm hoping to scrapbook some this week-end.  I haven't done this since Eliana was born so I'm even further behind than I was a year ago.  (I'm not sure I'll ever catch up though.) 


The thing that most excites my children is that snow is forecasted for tomorrow.  We have not had a good snow in a couple of years and this would be a lot of fun.  It would be nice for it to happen on a week-end so that Roger can be outside with them.  Between Eliana and my foot, I'm not sure I'm a good candidate for playing in the snow. 


I continue to reflect on God's call on my life.  What does it mean to serve Him?  How do I need to move out of my comfort zone to love on others?  How can I serve with my family?  Are we worshipping God in a way that is pleasing to Him.  I want to have God's heart for others.  I feel like He opening my heart to new things - some I know are due to how my eyes and heart have been forever changed by having Eliana join our family.  I remain thankful and blessed.


With love,


Leslie 

3 comments:

  1. Hi Leslie!


    I'm always here reading, even when you don't hear from me in awhile. Enjoyed your account of your New Year's Eve celebration.


    Two excellent books: "The Out-of-Sync Child" and "The Out-of-Sync Child Has Fun" both by Carol Stock Kranowitz. I read the first one and returned it, and I have the 2nd one (it was loaned to me by Justin's "Help Me Grow" service coordinator.), but I haven't had the time to read it. The first book explained about various types of sensory issues and gave examples of children and how they were helped. The second book is full of activities that parents can do at home to help children with sensory issues.


    I have one daughter that I think probably had sensory issues when she was young, but I never heard of it and thought she was just being rebellious. I think I handled it very badly. Justin is orally sensitive. He is making slow progress. He doesn't eat table food, yet, but I can put some foods through the hand mill which makes a textured puree. He will eat oatmeal, now (I put his dry oatmeal in the blender first to make it a little finer). He will eat fork-mashed soft fruits, like bananas or canned pears, but he will not eat cut up bananas or canned pears. He loves Gerber Graduates fruit flavored puffs and cheese crackers and just about any kind of soft cracker. Yet, he will not even try bread or cheese or cake. One time, he accepted bites of plain pound cake as he was "on the move" walking around in the kitchen, and he seemed to love it. He has eaten bites of pancake like that, also. But if we put him in his highchair and give him mouth-sized bites of pancake on his tray, he won't eat them but will throw them on the floor! He won't let a piece of soft vegetable near his mouth! If he has other sensory issues, I'm not aware of them as yet. Except he doesn't like his hair washed or his hair cut, but that is pretty common for any two year old. I don't have any therapist right now who is helping him with the oral sensitivity, so I feel like I'm on my own.


    Well, I'm need elsewhere, so may God continue to bless you, dear friend!


    GOD's BEST!

    Anna

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  2. Hi Leslie! I wanted to let you know about a therapy that I highly recommend for the sensory stuff. Both my boys had great success with it. It is called Therapeutic Listening. There are several similar auditory therapies but our OT said TL was the best. It can be incorporated with your brushing therapy. They are special cds that you listen to. You might want to ask your OT about it! Here's a link http://www.vitallinks.net/

    Take good care!

    Love, Shonda in Ca

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  3. Anna - thank you for the book recs! I just got one from the library today and will look for the other one when I finish that one.


    You are a great mom! (((Anna))) It's hard to figure out this sensory stuff - and it goes against all that we are taught in how to parent at times too. Praying you will see improvement in Justin's eating. That is a tough thing.


    Shonda - thank you for the link! I mentioned it to our OT (but couldn't remember the name). She said she had just thought the night before that this might be a good approach to take with Daniel. Great minds!


    Love you both!

    Leslie

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