Saturday, April 14, 2007

Packing and preparing

Well, I'm not actually doing either yet - though I'm thinking on it and starting to make a list.  I hate packing - even when it's for something fun.  Packing for this seems ... I don't know ... but it's definitely not something "fun".    It's like something I don't really want to think about.  What will I need while I'm in the hospital with my sweet baby?  I didn't even pack for her birth!  I usually pack while I'm in labor (yes, I always put it off until the last moment).  Eliana's labor started with me being sick - very, very sick!  I was hospitalized for severe dehydration which had caused contractions.  Kind of like the start of my pregnancy.     I can grin about it now.

My heart jumps each time I look at my blog and it's past midnight.  The ticker counter is one of the first things I see - after my beautiful baby's smiling face.  When the count  has gone day another day it always startles me.  Did you notice what it says now?  1 day until open heart surgeryOne day.  We have been counting towards this day for awhile and now it is almost here.  I'm not sure I'm ready for this.  I'm not really sure that I ever would be though.  How do you prepare for something like this?  Pray and pray and pray some more.

Speaking of prayer, we were blessed to have 3 elders from our church come to pray with us this morning.  They annointed and prayed for Eliana, her surgery, our family and more.  I am thankful that these dear friends were willing to do this for us. 

I know that God hears our prayers, though I do confess that I had many times early in this journey of feeling like my prayers were being ignored (I knew that they weren't) or that "NO" was the answer.  It hurt to have several very specific prayers answered in ways opposite of what I'd prayed for.  I know that there is no guarantee that I'll get what I want when I pray.  I know that God knows better than I do.  I also know that sin wages war on us each and every day.  It helps us long for a new  home where there is no sickness or sadness or death.

I've had so many people tell me that they are praying for us.  So many!  Churches, prayer chains, Bible studies, and friends all over the country and world even.  People posting requests on their blogs - friends and even strangers.  (If you have something posted about Eliana on your blog, I would love to know that!)   Many of my sweet FIAR sisters are praying for us and many have signed up on a list so that we have prayer coverage around the clock.  What a blessing that is to me that people would care enough to pray for us!  It brings me to tears every time.  (Yes, I'm in tears a lot these days.  Some sad tears and often tears of happiness too.)     Thank you - all of you!

Just last night as we were talking with our children, Joshua seemed surprised when I said something about Eliana's heart being fixed.  He asked if she was going to have her heart fixed.  I said "yes".  (Haven't we been talking about this?  Maybe it's our recent study of the heart that made it seem more real to him?)  Then he asked if they were going to have to cut her open.  I again responded "yes".  Then with a quavering voice and tears in his eyes he asked "Is she going to die?"  With tears in my own eyes I told him that the surgery was to help her so that she could live.  I don't want to be dishonest with him as there is always risk with surgery, but I also don't want to plant fears there either.  I know he isn't ready to hear the details of what she'll be going through.  Maybe after it's all over and she is safely home.  Please pray for his tender heart - and my other children's hearts too as I know it will be hard for each of them in different ways. 

We spent most of the day at home today.  We had plans to be out, but circumstances changed and we felt it best to stay here.  We are hoping to stay healthy.  We want to be well going into Eliana's surgery.  A calm day at home was a nice blessing. 

I still need to pack.  I don't know if I'll be staying while Eliana is in ICU.  Some people have said to go home and rest as the nurse to patient ratio is really high - and Eliana will be heavily sedated at first.  On the other hand it just seems wrong somehow to leave my baby.  How can I just leave her there?  It's not that I don't trust her care, I just don't want her to be alone.  Is it just thinking that I'll be a "bad mom" if I leave her there?  I know that once she is transferred to a room that I'll be with her around the clock.  I'm just not sure about the first nights.  I guess that hampers my knowing how to pack.  I really don't know what I'm doing.  And that is like so much of this journey so far - I really don't know what I'm doing much of the time. 

I'm praying and doing my best.  I'm trying to lean on God and learn from all of this.  I have wondered what I'm supposed to be learning and had many conversations with God about all that I've gone through.  I've wondered if walking through this time of fire would change me.  I have told God that it would be a real shame to have gone through this and remain unchanged.  I want Him to do a work in me!  I want Him to show in me.  I want Him to be able to use me. 

Please keep praying for our family.  I am thankful for your prayers, your notes and your comments of encouragment.  Even though I'm not able to respond to each of you, know that your words, your efforts and your love have touched my heart deeply!

With love,

Leslie











9 comments:

  1. I too couldn't imagine leaving my baby and going home, hope you are able to get rest when you can while she is in for her recovery (easier said than done) Praying for a comfortable stay for both you and Eliana.


    Just thought I would let you know that I have "Praying for Eliana" on my blog...www.athomewiththekeffers.blogspot.com


    Take care, and continuing to pray in Canada!!

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  2. Leslie,


    Here are a couple of things to take that you may not think of...


    A sweater, fleece or hoodie-type jacket. Sometimes nerves can make you feel so cold!


    Comfy clothes and shoes. If you have Crocs, these are perfect because you can slip them on and off easily.


    Quarters-sometimes you may just need a snack or drink or a newspaper just to change your scenery.


    One of Eliana's blankets (unwashed) from home-you can keep it with her and it will have that familiar 'home' smell on it for her.


    Camera-you may not feel comfortable with taking her picture after surgery, but then you may....lots of people take pictures to look back at and see how far they've come.


    How far are you from the hospital? I'd let that determine whether I could leave her while in ICU. Would it be easy to get back if you made it home and decided you had to be with her?

    I'd prepare to stay just in case. You may change your mind and decide you can't leave!


    I can't think of anything else...


    I hope you are able to have a wonderful day of family time today and will be praying for you and Roger, your children (this is so hard on them!) and especially for Eliana, Dr. Jaggers and his team.


    I can't wait to hear the good news that you are all home and this chapter is behind you!


    Love,

    Lisa

    'Lisalyn'

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  3. I'll be praying for you, Leslie. And little Eliana, of course. I will link over to you from my site. Keep your blog updated as you can!


    Carri (from MOMYS)

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  4. I'm praying for you guys, Leslie. My mom is in town and I just shared about Eliana this morning. We'll be praying for you guys together. I put info about Eliana and a Link to your blog on my blog http://melissajc.blogspot.com/ though I can't get Sheri's beautiful link to work right.

    I'll be praying...

    Melissa

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  5. Julie Mason Goley - North Augusta, SCApril 15, 2007 at 3:47 PM

    The last time we saw each other face to face was probably the day you got married. Now, six children later for you (and one for me)...I still feel connected to your friendship and spirit that so nurtured me in those college years. It still nurtures me today. What a blessing to know that friendships like ours nurture the spirit and stay strong, even in the times we might feel weak and isolated.


    What a joy to know that in a "once a year" letter exchange we can still share in our happy times and ask for support with our pain and fears. That's a true friendship and it is an honor to be a part of your prayer chain in these times you are facing.


    Eliana is ready to heal and the power of God's love is with each of you. Eliana's picture is going to work with me to lift you all up throughout the day and in the weeks to come. Her heart may be small with holes but her spirit and her family's love is overflowing.


    She has thrived with a beautiful smile and interactive demeanor, despite her trials to this point. Imagine the joy and energy she will experience when those holes are repaired and strengthened to match her spirit! When you are feeling weary, focus on her best day ever that you have shared with her. Can you imagine just how much more incredible and full that experience will be when she has the chance to feel her best with a fully functioning heart!


    Experience her joy and know that she is on her way to healing. It is real and God will show you that time and again.


    I love you my friend!


    - Julie




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  6. Leslie---Just wanted you to know that I'll be praying for you and mentioning Eliana's surgery at my blog so others can be reminded to pray as well.


    Love to you all,

    Elysa

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  7. Leslie,


    You are never far from my thoughts. I hope you will be able to get some rest tonight. I think I already e-mailed you about ending up staying in a hotel one night while Connor was still in the CICU. I don't regret it all but it was something I wouldn't even consider prior to his surgery. You'll know what to do.


    The few things that I am really glad I had with me was crocheting and a walkman (to keep my busy during the surgery) and I had a case of water bottles (which we kept in the car) and a journal. I took a lot of pictures that I am glad I have now. I also had pictures of my other children taped to Connor's crib. (Kind of late to be telling you all of this now)


    Fear thou not; for I am with thee: be not dismayed; for I am]thy God: I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. Isaiah 41:10


    Your family is in my prayers. I will pray for the things on your list of specifics too.


    Love in Christ,

    Karen

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  8. Leslie,

    As Eliana is on my mind A LOT, and as I've just finished memorizing the book of James, one verse just seemed to stand out: "Is any sick among you? let him call for the elders of the church; and let them pray over him, anointing him with oil in the name of the LORD" ... I wanted to email you and suggest this, but did not know if you do this in your church or not. I was so blessed to read in tonight's post that this is just what took place earlier today! Praise God! And even though you do not feel ready for this, you have certainly done everything that is important! Eliana is in GOD's hands, now, and HIS hands are big enough!!!

    Love,

    Anna

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  9. I will pray for your little one. My cousin has been through a similar situation with one of her children. He will be 23 years old this year. The Lord will bring peace to you and your family as you endure this time. What a blessing it must be to see the love and compassion of our Lord through your children. They are going to be a blessing to everyone they meet. Praise God for all He is doing for your family and through your family!


    In Him,

    Stacy

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